Benign Paroxysmal Torticollis or BPT -Dose my Child have it?

This is a site to help parents recognize what BPT can be like with references and personal comments based on our personal experiences and from many parents around the world. BPT is a rare condition that is often misdiagnosed the first time a primary care physician is exposed to it. Please take the time to read the comments, too. Some signs & symptoms are: Head tilt, infantile seizure,benign paroxysmal Torticollis,migraine,emesis or vomiting, vertigo or loss of balance, somnolence or sleepiness.

Monday, January 14, 2008

BPT (benign paroxysmal torticollis)-Finding others with similar conditions that are Rare

Makingcontact.org is a good place to search for rare diseases, conditions, or medical puzzles - like Benign Paroxysmal Torticollis. I have been informed and assured others have experiences similar to ours. It is anonymous, but you can request to have your information available to others you choose.
I hope this helps.