Although children with BPT exhibit seizure like activity, with arm, leg, head or other movements described as shaking, jerking, or limbs extending and contracting, I am not aware of any BPT diagnosed child actually having epilepsy or showing any sign of abnormalities on a variety of tests, including lab work, MRI's, Cat Scans, etc. in the brain.
Also, I am not aware of any BPT patient in contact with me or in the medical literature that has shown any benefit to being on anti-seizure medications. The cause of the BPT is unknown and these medicines are treating a known cause that doesn't exist in these children. Usually after a trial of several months without improvement of the BPT symptoms, the parent decides to discontinue the medicines and realizes, thankfully, that it must be something else medically. Remember, most Doctors have never seen or read about BPT, as very few documented cases have been published and followed for the length of the BPT to resolution. Dr. Snyder did this in 1969 and most recent articles use his publication as a reference and quality study.
Epilepsy can be diagnosed, in my experience, more easily and only then should these potentially dangerous (on major organs) medicines be given to infants. Even more important for the child's future is that a misdiagnoses of epilepsy could haunt this child in adulthood when found in their medical records when it comes to insurability, and possibly employment for certain jobs. These comments and opinions I offer from my own research and experience with BPT and working in the medical field ( not as a physician) my whole career. Please use them as a guide to develop your own perspective and conclusions.
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My son was diagnosed with a rare form absence status epilepsy. His seizures show no symptoms until the seizure has lasted for hours! The only warning we had was he started acting only tired at first then gradually he started acting confused and from there for 24 hours he didn't know what year it was, where he went to school, or even what grade he was in etc. his motors skills were perfect and he talked to everyone normal the entire time, he just couldn't answer certain questions. The hospital kept him overnight and gave him fluids and in 24 hours he slowly started remembering and they said he was good and sent us home. We know now that he was having a constant seizure the ENTIRE TIME of his confusion! Almost 3 months later he begins having the same symptoms when I woke him up for his 2nd day of school. we are sent for an EEG, which revealed at 10 am he was actually having what the neurologist referred to as the worst EEG he had seen) we then were sent to a different children's hospital where they observed him until 8:00pm, all this time my son passes every test, he is talking and his motor skills are completely normal! They finally begin his EEG around 9:00pm. It reveals he is still in seizure! They are blown away. Say they have never seen an absence case like his and they quickly gave him a big dose of adavan which immediately stops the seizure and he is able to regain his memory immediately. Does anyone have a child who has these same symptoms? His neuro doctor ordered a brain glucose test, but when we went for a follow up last week they said the test had been canceled and they had no idea what happened? When I asked if they were going to draw his blood and re do the test, they said that his medicine was controlling the seizures so far so they didn't feel the need to do the test! I need advice and some direction. I searched further; visited epilepsy websites, blogs. I find info about someone having the same symptoms. I was really determined. Fortunately for me, I stumbled on a testimony of someone who had epilepsy for several years and was cured through herbal medication. I read awesome stories of people whose condition were worse . But due to numerous testimonies. I was more than willing to try it. I contacted the doctor Gabriel, and my son used the Nectar herbs. It became a miracle for my son free from rare form absence status epilepsy within 3 months. The Nectar medicine worked without any trace of side effects on my son. totally cure. I decided to share my son story to tell people out there, that there is a hope for those with epilepsy using nectar medicine and anyone who suffers from seizures can be cured. Email dr.gabriel474@gmail.com
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